My Grandma Scherer used to love watching sports….the Reds, IU, bowling, the Pacers. She loved sports for the simple love of the competition, but she also loved watching the players. And she used to rave about Pacer Jalen Rose and how he had such a nicely shaped bald head. I don’t know if Grandma Scherer would say Izzy has a nicely shaped bald head, but I know she would rave about how beautiful Izzy is. Izzy went to dance tonight bald. And she went to therapy with Brad tonight bald. I think her ultimate victory would be going to school bald, but I don’t see that happening anytime soon. And that’s fine. Like I always say, Izzy is driving this trich bus. I love the comments on my fb when I post a bald pic of Izzy–they are so positive and I share them with Izzy because they make her feel good. I also loved tonight when Counselor Brad with the luscious beard told her how awesome she looks with her shaved head or when Ms. Erin tells her that hair or no hair, she’ll be just fine at the dance recital in May. She has an amazing village of supportive superheroes in her life!

She’s been pulling her eyelashes and eyebrows since we shaved her head. And yesterday she was pulling arm hair. “It’s 100% useless hair mom!” I just remind her that she doesn’t have to pull, that she’s beautiful and loved and I move on with my day (praying as I go). My job is to Love, encourage, and support Izzy…not to fix the trich.

Four weeks until our epic Spring Break trip out East! Five weeks to her full psych evaluation!